WDZY1290AM/103.3FM- KWDF 840AM/99.7FM 8-12-2017

Our guest is Bill Murray, he will discuss kidney disease and how it changed his life, how he manages his life today with using hemodialysis.  He will also discuss what has changed for him in his everyday life since he started doing hemodialysis.

Mr. Murray is tirelessly working to assist others with the disease and  is an active member of the kidney community, hosting patient support group meetings, speaking for the National Kidney Foundation and serving as a patient advocate for NxStage.

Mr. Murray was a self-employed plumber for his company, Shamrock Plumbing, until Chronic Kidney Disease (CKD) and End Stage Renal Disease (ESRD) forced him to close his business and take disability.

He was biopsy diagnosed with IgA Nephropathy in 1996. At which point his nephrologist told him that he would require dialysis to live. He followed doctor’s orders including changing lifestyle and diet restrictions along with a mind boggling amount of medicine that was constantly modified for the next 17 years until his kidney function dropped into the danger zone and he went into end stage renal failure. But he spent those years, researching his disease and all of his treatment options. He discovered that home dialysis was the most effective and had the best results. He started on peritoneal dialysis (PD) for the first 10 months. But, because of weight gain and having to constantly use the highest strength solution due to his diabetes, he made the switch to home hemodialysis (HHD). He has continued this mode of treatment very successfully since. He is constantly promoting the advantages of doing home hemodialysis from the freedom of strict in-center schedule, to the flexibility of days performed, to less or no physical draining, to the fact that it is most closely related to natural kidney function. From the difficulties of living with CKD and ESRD to coping with getting listed at transplant centers, searching for a living donor, to waiting for the call that a kidney has become available.

His personal experiences has ignited his passion for early detection, education, organ availability and donor support. He has become an active fundraiser in all related Walks in the area. He has become an active advocate both locally and nationally for National Kidney Foundation (NKF), Nephcure Kidney International (NKI) and Gift of Life Donor Foundation. He is peer mentor for both NKF and NKI. Bill is also a patient representative (PR), patient action committee (PAC) member and a subject matter expert (SME) for the ESRD Network 4 along with a SME for National NCC Patient and Family Engagement Learning and Action Network (N-KPFE-LAN) representing Network 4. He has also been recruited by NxStage to become one of their national advocates for home hemodialysis treatment options.

Bill was recognized by Gift of Life in 2014 as their outstanding first year volunteer and is being recognized by NKFDelaware Valley on World Kidney Day 2017 as their outstanding advocate for his work. Bill has been asked to serve on as a PAC member of a TEP regarding ESRD Medication Reconciliation and Management for CMS. He has also joined Kidney Health Initiative (KHI) as a PAC member of their Patient Advisory Committee – Development of a Roadmap for Renal Replacement Therapies (RRT). Bill has just recently been as to join the American Society of Transplantation (AST) conference to be held in DC in October 2017. For more information go www. Nxstage.com

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W4CY & W4Vet August 10, 2017

Our guest is Bill Murray, he will discuss kidney disease and how it changed his life, how he manages his life today with using hemodialysis.  He will also discuss what has changed for him in his everyday life since he started doing hemodialysis.

Mr. Murray is tirelessly working to assist others with the disease and  is an active member of the kidney community, hosting patient support group meetings, speaking for the National Kidney Foundation and serving as a patient advocate for NxStage.

Mr. Murray was a self-employed plumber for his company, Shamrock Plumbing, until Chronic Kidney Disease (CKD) and End Stage Renal Disease (ESRD) forced him to close his business and take disability.

He was biopsy diagnosed with IgA Nephropathy in 1996. At which point his nephrologist told him that he would require dialysis to live. He followed doctor’s orders including changing lifestyle and diet restrictions along with a mind boggling amount of medicine that was constantly modified for the next 17 years until his kidney function dropped into the danger zone and he went into end stage renal failure. But he spent those years, researching his disease and all of his treatment options. He discovered that home dialysis was the most effective and had the best results. He started on peritoneal dialysis (PD) for the first 10 months. But, because of weight gain and having to constantly use the highest strength solution due to his diabetes, he made the switch to home hemodialysis (HHD). He has continued this mode of treatment very successfully since. He is constantly promoting the advantages of doing home hemodialysis from the freedom of strict in-center schedule, to the flexibility of days performed, to less or no physical draining, to the fact that it is most closely related to natural kidney function. From the difficulties of living with CKD and ESRD to coping with getting listed at transplant centers, searching for a living donor, to waiting for the call that a kidney has become available.

His personal experiences has ignited his passion for early detection, education, organ availability and donor support. He has become an active fundraiser in all related Walks in the area. He has become an active advocate both locally and nationally for National Kidney Foundation (NKF), Nephcure Kidney International (NKI) and Gift of Life Donor Foundation. He is peer mentor for both NKF and NKI. Bill is also a patient representative (PR), patient action committee (PAC) member and a subject matter expert (SME) for the ESRD Network 4 along with a SME for National NCC Patient and Family Engagement Learning and Action Network (N-KPFE-LAN) representing Network 4. He has also been recruited by NxStage to become one of their national advocates for home hemodialysis treatment options.

Bill was recognized by Gift of Life in 2014 as their outstanding first year volunteer and is being recognized by NKFDelaware Valley on World Kidney Day 2017 as their outstanding advocate for his work. Bill has been asked to serve on as a PAC member of a TEP regarding ESRD Medication Reconciliation and Management for CMS. He has also joined Kidney Health Initiative (KHI) as a PAC member of their Patient Advisory Committee – Development of a Roadmap for Renal Replacement Therapies (RRT). Bill has just recently been as to join the American Society of Transplantation (AST) conference to be held in DC in October 2017. For more information go www. Nxstage.com

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W4Cy & W4Vet 12-22-2016

logoOur first guest is NxStage patient Alphonso Jefferson:

Alphonso Jefferson has been on more frequent home hemodialysis with NxStage since 2010. Prior to Home Hemodialysis, he did 8 years on traditional, 3-times-weekly in-center dialysis, and also has experience with peritoneal dialysis. Since starting NxStage therapy, he has seen significant benefits, including increased energy, better blood pressure control with fewer meds, an end to Restless Legs Syndrome, less depression, and quicker recovery time. Alphonso participated in the 200+ mile Tour DaVita bike rides for many years. Alphonso says that when he was in-center, he was not aware of more frequent HHD therapy, and he wants to ensure other patients are educated to consider this option.

About the NxStage System One
The NxStage System One is the first and only truly portable hemodialysis system cleared for home use by the U.S. Food & Drug Administration (FDA). Its simplicity and revolutionary size (just over a foot tall) are intended to allow convenient use in patients’ homes and give patients the freedom to travel with their therapy. When combined with the NxStage PureFlow SL Dialysis Preparation System, patients are able to further simplify, using ordinary tap water to create dialysis fluid. Unlike conventional hemodialysis systems, the System One requires no special infrastructure to operate. Under the guidance of their physician, patients can use the NxStage System One, with their trained partners, where, how and when it best meets their needs – at home or on vacation and at a medically appropriate treatment frequency. http://www.nxstage.com/.

 

 

andrea-smith-headshot-600x800-e1427750745941Our next guest is Award Winning Tech Expert Andrea Smith, will discuss,  “Last Minute Holiday Gift Guide focusing on Tech Trends, Gadgets and Games” and How to Get the Hottest Gaming Gadgets Before They’re Gone!

Andrea Smith is an award-winning technology reporter, producer, consultant and speaker. One of the first woman journalists covering technology, Andrea has reported on technology and social media and the impact both have on people and society for broadcast, print and digital outlets since before Jeff Bezos launched Amazon.com. She has been an on-air Technology contributor to GMA, WABC TV, ABC News Digital, Huff Po, CNBC, World News Now, Mashable and more. For more information on how to find the lustiest gift guide go to http://www.sie.com/en/index.html

 

 

 

aaeaaqaaaaaaaampaaaajdc0yjy3ntq1ltbjyjatndywyi1hymy4lthmowm2mje3ywmymaOur last guest today is Anne Marie Warren, Ohio and Pennsylvania Healthcare & Institutions Relationship Manager for Bank of America Merrill Lynch. Ms. Warren will discusses the highlights of the survey “Better Money Habits Report Found Young Adults and Are they Optimistic about Their Financial Futures but Worried about Jobs and the Economy? She talks about the results and resources that are available for those looking for guidance when it comes to personal finance.

Anne Marie Warren is the Ohio and Pennsylvania Healthcare & Institutions Relationship Manager for Bank of America Merrill Lynch. In this role, Warren manages capital commitments and treasury and investment services for not-for-profit entities across the region.  Warren is active as a volunteer in her community and currently serves on the board of the Tony award winning Cleveland Play House, the oldest regional theater in the country.  Warren also serves as a Better Money Habits Champion for Bank of America.  In this role, Warren and her colleagues strive to make personal financial education information accessible to all members of the community. Warren has two children and resides in Cleveland, Ohio.  For more information please visit:  www.bettermoneyhabits.com

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