Our guest is Bill Murray, will discuss kidney disease and how it changed his life, how he manages his life today with using hemodialysis. He will also discuss what has changed for him in his everyday life since he started doing hemodialysis.
Mr. Murray is tirelessly working to assist others with the disease and is an active member of the kidney community, hosting patient support group meetings, speaking for the National Kidney Foundation and serving as a patient advocate for NxStage.
Mr. Murray was a self-employed plumber for his company, Shamrock Plumbing, until Chronic Kidney Disease (CKD) and End Stage Renal Disease (ESRD) forced him to close his business and take disability.
He was biopsy diagnosed with IgA Nephropathy in 1996. At which point his nephrologist told him that he would require dialysis to live. He followed doctor’s orders including changing lifestyle and diet restrictions along with a mind boggling amount of medicine that was constantly modified for the next 17 years until his kidney function dropped into the danger zone and he went into end stage renal failure. But he spent those years, researching his disease and all of his treatment options. He discovered that home dialysis was the most effective and had the best results. He started on peritoneal dialysis (PD) for the first 10 months. But, because of weight gain and having to constantly use the highest strength solution due to his diabetes, he made the switch to home hemodialysis (HHD). He has continued this mode of treatment very successfully since. He is constantly promoting the advantages of doing home hemodialysis from the freedom of strict in-center schedule, to the flexibility of days performed, to less or no physical draining, to the fact that it is most closely related to natural kidney function. From the difficulties of living with CKD and ESRD to coping with getting listed at transplant centers, searching for a living donor, to waiting for the call that a kidney has become available.
His personal experiences has ignited his passion for early detection, education, organ availability and donor support. He has become an active fundraiser in all related Walks in the area. He has become an active advocate both locally and nationally for National Kidney Foundation (NKF), Nephcure Kidney International (NKI) and Gift of Life Donor Foundation. He is peer mentor for both NKF and NKI. Bill is also a patient representative (PR), patient action committee (PAC) member and a subject matter expert (SME) for the ESRD Network 4 along with a SME for National NCC Patient and Family Engagement Learning and Action Network (N-KPFE-LAN) representing Network 4. He has also been recruited by NxStage to become one of their national advocates for home hemodialysis treatment options.
Bill was recognized by Gift of Life in 2014 as their outstanding first year volunteer and is being recognized by NKFDelaware Valley on World Kidney Day 2017 as their outstanding advocate for his work. Bill has been asked to serve on as a PAC member of a TEP regarding ESRD Medication Reconciliation and Management for CMS. He has also joined Kidney Health Initiative (KHI) as a PAC member of their Patient Advisory Committee – Development of a Roadmap for Renal Replacement Therapies (RRT). Bill has just recently been as to join the American Society of Transplantation (AST) conference to be held in DC in October 2017. For more information go www. Nxstage.com